Walk For Ichthyosis 2017

Fundraisers:  Mudassar Ulhaq, Dave Hill, Eric Lam, Adnan Uz-Zaman, MICHAEL WARDEN
Mudassar Ulhaq
Running total: £4,890.00
Target:£5,000.00
Total raised incl. Gift Aid:£5,416.75
Total donors:117
Offline fundraising:£1,127.00

About

Kennet & Avon Canal Walk, Reading to Newbury (25 Miles), 22nd July 2017.
We are raising money for the Ichthyosis Support Group (ISG) by taking part in a charity walk to raise money for the Ichthyosis sufferers and to aid fund research projects.
The team will walk 25 Miles from Reading to Newbury along the Kennet & Avon Canal on Saturday 22nd July 2017.
Fundraisers:  Mudassar Ulhaq, Dave Hill, Eric Lam, Adnan Uz-Zaman, Ann Smeaton, Michael Warden, Iain Wade, Carl Baker, Lindsay Wade, Varshini Shugirthan Sadie Maguire, Liz Dale, John Dale, Ellamay Dale, Elise Setchfield, Lianne Turner, Jen Lambie, Leigh Reed, Andy Corbett, Sky Shepherd, Poppy Shepherd, Angel Shepherd, Julie Tadd, Bobby Tadd, Paul Handscombe, Harry Handscombe, Ruth Handscombe, Leila Naboulsi, Alison & Amy Cowen
What is Ichthyosis?
Ichthyosis is a rare genetic skin condition affecting as few as 1 in 300,000 people depending on the type of ichthyosis. It is a lifelong condition which normally presents at birth. For many there is a rigid daily bathing routine. Severe ichthyosis requires scrubbing to remove excessive growth and prevent infections that can be fatal. Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking. If left to dry out the skin may develop contractures which can break bones in tiny fingers and toes and cause the sufferer excruciating pain. Ichthyosis can be fatal, especially in the early weeks of life.
The Icthyosis Support Group (ISG) needs to raise money to continue the excellent work funding research into such a rare condition as well as providing the much needed support to those affected by ichthyosis through literature and educational conferences. Meeting and talking to others similarly affected can help enormously with building confidence and the ability to cope with such a visual condition. Exchanging experiences, thoughts and ideas with people who understand goes a long way with trying to cope with such a misunderstood condition.

Where will the money go
The funds raised will fund children affected by ichthyosis to attend an ISG annual conference that will be held in London this year, helping to gain greater confidence, increase self-esteem and interact with other children affected by ichthyosis. The funds will also help fund research projects. The ISG have grants available to researchers undertaking research relevant to ichthyosis patients.
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Charity
Ichthyosis Support Group. - The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Ichthyosis is a rare genetic condition which predominantly affects the skin.  It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many.  It is a lifelong condition, usually presenting at birth and may be fatal.

For many the daily bathing routine is rigid.  Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death.  Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking.  If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.
Ichthyosis Support Group. - The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public. Ichthyosis is a rare genetic condition which predominantly affects the skin. It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many. It is a lifelong condition, usually presenting at birth and may be fatal. For many the daily bathing routine is rigid. Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death. Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking. If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.
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Event details
22 July 2017
The team will walk 25 Miles from Reading to Newbury along the Kennet & Avon Canal on Saturday 22nd July 2017
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Recent donors
Showing results 1 - 25 of 117
Adnan £40.00 (+ £10.00 giftaid)
21.07.17
Great cause. Looking forward to completing the challenge with all taking part tomorrow. Let's hope for no rain. My aim is to complete within 7-8hrs...
Laura Bell £20.00 (+ £5.00 giftaid)
21.07.17
Good luck Jen! Xx
Charlie and Matt £15.00 (+ £3.75 giftaid)
21.07.17
Wishing Liz Dale and EllaMay the best of luck tomorrow. Hope the rain holds off for you xx
WIlkie £5.00
21.07.17
Good luck Leila!
Lauren Elston £5.00
21.07.17
For Lianne Turner and family.
Jake £10.00 (+ £2.50 giftaid)
21.07.17
Good luck Leila
Navida Ahmed £50.00
21.07.17
Best of luck all!!
J Wilkinson £5.00 (+ £1.25 giftaid)
21.07.17
Anonymous £20.00 (+ £5.00 giftaid)
21.07.17
Good Luck Leigh! Alison and Victoria xx
Nicole Baigent £15.00 (+ £3.75 giftaid)
20.07.17
Good luck Liz and Ellamay love Nicole and Isabella xxx
Uncle Mick £20.00 (+ £5.00 giftaid)
20.07.17
Good Luck Team Handscombe
Stuart Webber £25.00 (+ £6.25 giftaid)
20.07.17
Good luck Paul!
John Dale £25.00 (+ £6.25 giftaid)
20.07.17
Good luck Ellamay and look after Mummy x
Maisy Dale £20.00 (+ £5.00 giftaid)
20.07.17
Good luck big sis Ellamay x
Lesley Handscombe £40.00 (+ £10.00 giftaid)
20.07.17
Part 2. Good luck the Handscombe trio. Hope not too painful. xx
Lesley Handscombe £10.00 (+ £2.50 giftaid)
20.07.17
Good luck Paul, Harry and Ruth Handscombe. Love you all.
Devinia and Keira £20.00 (+ £5.00 giftaid)
20.07.17
Good luck ellamay love u xxxxxx
Im £15.00 (+ £3.75 giftaid)
20.07.17
Good luck
Peggy
19.07.17
Good luck, daddy Eric! hope weather will be dry and sunny. We love you xx
Anonymous £15.00 (+ £3.75 giftaid)
19.07.17
Sarah Griff £10.00 (+ £2.50 giftaid)
19.07.17
Good luck everyone especially Liz and Ellamay
Anonymous £10.00 (+ £2.50 giftaid)
19.07.17
Will be thinking of you!!
Debs Hewes £5.00 (+ £1.25 giftaid)
19.07.17
Good luck, hope the blisters aren't to bad!!
Chloe Bryce £10.00 (+ £2.50 giftaid)
19.07.17
Good luck guys! x
Karen Quigley £10.00
19.07.17
Good luck
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