Walk For Ichthyosis 2017

Fundraisers:  Mudassar Ulhaq, Dave Hill, Eric Lam, Adnan Uz-Zaman, MICHAEL WARDEN
Mudassar Ulhaq
Running total: £6,104.00
Target:£5,000.00
Total raised incl. Gift Aid:£6,881.25
Total donors:153
Offline fundraising:£1,214.00

About

Kennet & Avon Canal Walk, Reading to Newbury (25 Miles), 22nd July 2017.
Thank you so much to all the walkers and volunteers that attended the Walk for Ichthyosis Charity Event in aid of The Ichthyosis Support Group on Saturday 22nd July. We hope you had a great day walking along the towpath from Reading to Newbury and completed your personal challenge!
Together we have hit our target however there is still an opportunity to donate! All donations to The Ichthyosis Support Group Charity, no matter how large or small can continue to make a difference.
We are continuing to raise money for the Ichthyosis Support Group (ISG) following our participation in a charity walk to raise money for the Ichthyosis sufferers and to aid fund research projects. The teams walked 25 Miles from Reading to Newbury along the Kennet & Avon Canal on Saturday 22nd July 2017.
Fundraisers:  Mudassar Ulhaq, Dave Hill, Eric Lam, Adnan Uz-Zaman, Ann Smeaton, Michael Warden, Iain Wade, Carl Baker, Lindsay Wade, Varshini Shugirthan Sadie Maguire, Liz Dale, John Dale, Ellamay Dale, Elise Setchfield, Lianne Turner, Jen Lambie, Leigh Reed, Andy Corbett, Sky Shepherd, Poppy Shepherd, Angel Shepherd, Julie Tadd, Bobby Tadd, Paul Handscombe, Harry Handscombe, Ruth Handscombe, Leila Naboulsi, Alison & Amy Cowen
What is Ichthyosis?
Ichthyosis is a rare genetic skin condition affecting as few as 1 in 300,000 people depending on the type of ichthyosis. It is a lifelong condition which normally presents at birth. For many there is a rigid daily bathing routine. Severe ichthyosis requires scrubbing to remove excessive growth and prevent infections that can be fatal. Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking. If left to dry out the skin may develop contractures which can break bones in tiny fingers and toes and cause the sufferer excruciating pain. Ichthyosis can be fatal, especially in the early weeks of life.
The Icthyosis Support Group (ISG) needs to raise money to continue the excellent work funding research into such a rare condition as well as providing the much needed support to those affected by ichthyosis through literature and educational conferences. Meeting and talking to others similarly affected can help enormously with building confidence and the ability to cope with such a visual condition. Exchanging experiences, thoughts and ideas with people who understand goes a long way with trying to cope with such a misunderstood condition.

Where will the money go
The funds raised will fund children affected by ichthyosis to attend an ISG annual conference that will be held in London this year, helping to gain greater confidence, increase self-esteem and interact with other children affected by ichthyosis. The funds will also help fund research projects. The ISG have grants available to researchers undertaking research relevant to ichthyosis patients.
Fundraising has now finished, but thanks for visiting this page.
Charity
Ichthyosis Support Group. - The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Ichthyosis is a rare genetic condition which predominantly affects the skin.  It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many.  It is a lifelong condition, usually presenting at birth and may be fatal.

For many the daily bathing routine is rigid.  Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death.  Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking.  If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.
Ichthyosis Support Group. - The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public. Ichthyosis is a rare genetic condition which predominantly affects the skin. It can affect as few as 1:300,000 people depending on the type of ichthyosis, of which there are many. It is a lifelong condition, usually presenting at birth and may be fatal. For many the daily bathing routine is rigid. Ichthyosis skin requires rigorous scrubbing to remove excessive growth and prevent infections that can cause death. Thick greasy creams need to be applied constantly to prevent the skin from drying out and cracking. If left to dry out it can cause contractures, which can even break bones in tiny fingers and toes and the sufferer endures excruciating pain.
Skip share links
Event details
22 July 2017
The team will walk 25 Miles from Reading to Newbury along the Kennet & Avon Canal on Saturday 22nd July 2017
Skip recent donors
Recent donors
Showing results 1 - 25 of 153
Liz Dale £20.00 (+ £5.00 giftaid)
19.08.17
Chris £60.00 (+ £15.00 giftaid)
18.08.17
Well done to Leila, Mandy and all the other walkers
Liz Dale £30.00 (+ £7.50 giftaid)
09.08.17
Anonymous £35.00 (+ £8.75 giftaid)
08.08.17
Anonymous £80.00 (+ £20.00 giftaid)
08.08.17
Anonymous
04.08.17
Liz Dale £135.00 (+ £33.75 giftaid)
29.07.17
Waverton Charity Pot £30.00 (+ £7.50 giftaid)
28.07.17
Lena £15.00 (+ £3.75 giftaid)
28.07.17
So pleased you all did so well on your walk from Reading to Newbury. Hope youve all recovered.
MG
27.07.17
Great effort Ambassador! Well done and for a very good cause!
George Green £15.00 (+ £3.75 giftaid)
27.07.17
Well done Paul and Family!
Tony £20.00 (+ £5.00 giftaid)
26.07.17
well done!
Ray Rowley £20.00 (+ £5.00 giftaid)
26.07.17
Well done to everyone who took part - great effort !
Annie £10.00
26.07.17
Great to see you have successfully completed the long walk. Best wishes
Abz £20.00
25.07.17
Liz Dale £92.00 (+ £23.00 giftaid)
25.07.17
Leigh £90.00 (+ £22.50 giftaid)
25.07.17
Cash Donations for me (Leigh Reed)
Lauren
24.07.17
Well done Leila!!
Anonymous £10.00 (+ £2.50 giftaid)
24.07.17
Well done Leigh. Anne and Di
James £5.00 (+ £1.25 giftaid)
24.07.17
Well done Leila!
Anonymous
23.07.17
Helen £30.00 (+ £7.50 giftaid)
23.07.17
Hope you had a good day's walking without too many showers. Well done Ann and the rest of the team.
Peter Townson £50.00 (+ £12.50 giftaid)
23.07.17
Well done to everyone who took part
Leyla Uz-Zaman £20.00 (+ £5.00 giftaid)
23.07.17
Well done everyone...what an achievement. Very proud of you all! Xxx
Brian Lucas £30.00 (+ £7.50 giftaid)
23.07.17
Well done Paul, Harry and Ruth!! love from Brian and Jim
Page
back to top