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Remind me later

Ian's Edinburgh to London and back bike ride!

Fundraisers:  Katy Brown, Sarah Buckley, Ian Kellar
Running total: £2,302.00
Total raised incl. Gift Aid:£2,737.50
Total donors:104
Offline fundraising:£0.00

About

Hi, thanks for visiting our page. Through Virgin Money Giving, you can sponsor us and donations will be quickly processed and passed to charities. Virgin Money Giving is a not for profit organisation and will claim gift aid on a charity's behalf where the donor is eligible for this. We really appreciate all your support and thank you for any donations.
Ian (dad of Seth, who is Sam and Harry's friend) is cycling from from London to Edinburgh and back to London against the clock. Details of the event are here: London-Edinburgh-London 1400km audax
We are splitting all fund raised 50:50 between the Neuroblastoma Society and the MPS Society, charities which are very close to the hearts of two little boys and their families in Reception Class at the Wharton's Primary School, Otley - Harry Buckley and Samuel Brown.
Sam has a very rare genetic condition called Morquio Syndrome. It is a type of Mucopolysaccharidosis, or MPS, a group of metabolic diseases that cause progressive and incurable physical, and often mental disability and in the most serious types of MPS often lead to death in childhood.
For Sam - the effects are just physical thankfully. Morquio Syndrome affects his growth (he will be between 3-5 feet), and his physical ability, and there are significant long-term health problems. He currently spends a day a week at Manchester Children's Hospital on a clincial trial of treatment.
Harry was diagnosed with Neuroblastoma Cancer in November 2011. He had been very poorly for the month prior to this date. He had intermittent pain in his legs, a  continuous temperature and he had lost the zest for life that he once had. Several GP visits took place and 2 stays in Airedale hospital, but it wasn't until we went to LGI and following an ultrasound a large mass the size of a coke can was found in his abdomen. Harry was diagnosed with stage 4 cancer, which had meant it had spread to his bones and bone marrow too. 
Neuroblastoma cancer affects 100 children a year in the UK. it is an extremely aggressive disease, whereby survival rates are low and in the region of about 30%. Harry has endured 16 months of treatment that has included, chemotherapy, surgery to remove the mass in his abdomen, high dose chemotherapy, followed by a stem cell rescue, radiotherapy then finally antibody treatment.
Harry finished his treatment in Feburary 2013, but unfortunately his end of treatment tests highlighted 3 hot spots of cancer in his bones, thus he had relapsed. Relapsed disease is incurable. We have spent 3 wonderful months giving Harry fun times and not to forget his 3 year old brother, but unfortunately the disease is spreading fast throughout his body and pain management is the key issue now.
Harry wants to know how he got Neuroblastoma cancer and to answer this, research is needed. Not enough research is carried out into investigating this disease and thus understanding it. 
Please donate what you can, so that more information, help and support is available to people affected by MPS and Neuroblastoma cancer. 
Thank You!
Fundraising has now finished, but thanks for visiting this page.
Charities
Neuroblastoma UK - Neuroblastoma is a rare and aggressive childhood cancer. About a hundred children in the UK are diagnosed each year. NBUK works exclusively for these children in raising funds for British research into the disease, and offering information and support for anyone affected by neuroblastoma.
The Society's ultimate aim is to find a cure for this aggressive disease.  

There are two ways to find a cure for neuroblastoma. The first is to conduct research into the disease in order to find better treatment. The second is to explore through clinical trials how effective existing and new combinations of treatment are in improving recovery from the disease and survival.

Over the past decade or so the Society has single-handedly funded about £2.5 million dedicated neuroblastoma research at specialist centres throughout the UK. A research study is only supported if it has passed a rigorous scrutiny by two or three experts chosen for their specialist knowledge of the proposed research area and then been evaluated and recommended by the Society's Scientific Advisory Board of leading neuroblastoma researchers and clinicians. Grants are then awarded by Trustees in the light of that advice within the limits of funds available.

Currently the Society is supporting thirteen studies with grant awards exceeding £1.7 million.

The society is also taking a leading role in bringing together other charities

We also provide information about neuroblastoma for parents and offer a befriending service where parents of newly diagnosed children can speak to parents who have experience of the disease.
Neuroblastoma UK - Neuroblastoma is a rare and aggressive childhood cancer. About a hundred children in the UK are diagnosed each year. NBUK works exclusively for these children in raising funds for British research into the disease, and offering information and support for anyone affected by neuroblastoma. The Society's ultimate aim is to find a cure for this aggressive disease. There are two ways to find a cure for neuroblastoma. The first is to conduct research into the disease in order to find better treatment. The second is to explore through clinical trials how effective existing and new combinations of treatment are in improving recovery from the disease and survival. Over the past decade or so the Society has single-handedly funded about £2.5 million dedicated neuroblastoma research at specialist centres throughout the UK. A research study is only supported if it has passed a rigorous scrutiny by two or three experts chosen for their specialist knowledge of the proposed research area and then been evaluated and recommended by the Society's Scientific Advisory Board of leading neuroblastoma researchers and clinicians. Grants are then awarded by Trustees in the light of that advice within the limits of funds available. Currently the Society is supporting thirteen studies with grant awards exceeding £1.7 million. The society is also taking a leading role in bringing together other charities We also provide information about neuroblastoma for parents and offer a befriending service where parents of newly diagnosed children can speak to parents who have experience of the disease.
The Society For Mucopolysaccharide Diseases - The MPS Society provides support to children, adults and families affected by MPS and related diseases. These are a group of 25 genetic disorders which are progressive and life limiting. There is treatment available for some of the diseases but no cure. Please help us fundraise to continue our support, fund vital research and increase awareness.
The Society For Mucopolysaccharide Diseases - The MPS Society provides support to children, adults and families affected by MPS and related diseases. These are a group of 25 genetic disorders which are progressive and life limiting. There is treatment available for some of the diseases but no cure. Please help us fundraise to continue our support, fund vital research and increase awareness.
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Event details
28 July 2013
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Recent donors
Showing results 1 - 25 of 104
Anonymous £20.00
18.08.13
Anonymous £10.00 (+ £2.50 giftaid)
11.08.13
Jean Adams & Martin White £20.00 (+ £5.00 giftaid)
11.08.13
Fantastic achievement. Enjoyed following via PC (and not in the saddle).
Richard Jackson £20.00 (+ £5.00 giftaid)
10.08.13
Unbelievable ride mate
Joyce&Conrad Proud parents of tandem stoker £45.00 (+ £11.25 giftaid)
09.08.13
This donation includes £30 for supporting fboab and OurMrSmith. Well done Ian et al. , and a pleasure meeting you " Eskdalemuir.
Norman and Eileen xx £20.00 (+ £5.00 giftaid)
07.08.13
Well done Ian, an amazing achievement!
Angela Grange £20.00 (+ £5.00 giftaid)
06.08.13
I heard you did it Ian! I'm full of admiration for you, although I think you're slightly crazy. What perfect motivation too to be riding for Harry and Sam, who've I've just read all about. Well done, you star!
Anonymous £20.00 (+ £5.00 giftaid)
04.08.13
Lisa Rigby £5.00 (+ £1.25 giftaid)
03.08.13
Well Done.
Alison Wright £20.00 (+ £5.00 giftaid)
02.08.13
Mark & Sally Johnson £100.00
02.08.13
Congratulations again Ian! Sorry it's late, we both thought the other one had done the donation. Lots of love Sally, Mark, Kirsten & Caine XXXX
Anonymous £10.00 (+ £2.50 giftaid)
02.08.13
40 year old son just completed LEL, too. What a great cause
Anonymous £20.00 (+ £5.00 giftaid)
02.08.13
Jo Hart £20.00 (+ £5.00 giftaid)
01.08.13
Well done Ian!
Kate, Chris, Rosie and Fin £10.00 (+ £2.50 giftaid)
01.08.13
Awesome achievement for great causes.
Liz Glidewell £10.00 (+ £2.50 giftaid)
01.08.13
Amazing achievement Ian
swarm_catcher £10.00 (+ £2.50 giftaid)
01.08.13
Donating whilst you sup a shandy in Saffron Walden. You deserve it! Enjoy the last day of LEL 2013.
Rebecca Lawton £50.00 (+ £12.50 giftaid)
01.08.13
Keep going Ian
JJ £20.00 (+ £5.00 giftaid)
01.08.13
Maisy's nanny and grandad £10.00 (+ £2.50 giftaid)
31.07.13
Anonymous £5.00
31.07.13
Anonymous £10.00 (+ £2.50 giftaid)
31.07.13
What fabulous causes. Well done to you all.
Anonymous £5.00 (+ £1.25 giftaid)
31.07.13
Helen, Grace and Nathaniel Alred £5.00 (+ £1.25 giftaid)
31.07.13
Keep going!
Jill, Craig, Ben, Jake and Evelyn Armitage. £5.00 (+ £1.25 giftaid)
31.07.13
Well done Ian (and all of your support network behind you). A fantastic cause.
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