Run for FOP Heroes's
Fundraisers: Nicky Williams, James Muller, Diana Foxlee, Alexandra Sheridan, Marlena Wojas, Janine Clark, Coralie Butcher
Running total: £2,570.00
Total raised incl. Gift Aid:£2,947.50
On 14 May we will be dressing up as Super Heroes to take part in this challenge for a very rare condition close to our hearts - FOP
Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions. FOP progressively forms a second skeleton that imprisons the body in bone. FOP turns otherwise healthy people like Isla into human statues: a healthy mind locked inside a frozen body. There is currently no known treatment or cure.
All money raised by FOP Friends goes directly to supporting the research to find treatments and a cure. This research will also advance treatments for many other conditions such as osteoporosis, heart disease, spinal cord injury and childhood brain cancer.
No donation is too small. Thank you for your support, we really appreciate it
Love and thanks
Team FOP Heroes
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FOP Friends - FOP Friends is a charity set up to help those affected by FOP. Fibrodysplasia Ossificans Progressiva (FOP) is one of the rarest and most disabling genetic conditions known to medicine, causing bone to form in muscles and other connective tissues such as tendons and ligaments turning otherwise healthy people into human statues. A healthy mind locked inside a frozen body. The condition is so rare (1 in 2,000,000) that little commercial interest exists in finding a cure so Oliver and his friends need your help. Please be a FOP Friend by supporting our charity.
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DIFC Superhero Run 2017
14 May 2017
The Do it for Charity Superhero Run is your chance to become a real-life superhero as you pull on your cape and join thousands of fellow runners as they descend on Regent’s Park, London, on Sunday 14th May in a bid to make the UK a more charitable place to live!
Showing results 1 - 25 of 56
Webbs and Cooks £150.00 (+ £37.50 giftaid)
Belatedly, well done everyone from Viv and Chris Webb, Jill and Derek Cook xxx
Rachel Hanrahan £15.00 (+ £3.75 giftaid)
Well done girls, and go Coz! Love Rach x
Anne and Bill £100.00 (+ £25.00 giftaid)
Well done to everyone. Delighted to be able contribute to such important research. X
Jo Nick and Eloise £30.00 (+ £7.50 giftaid)
Well done all you superheroes! Xx
The Honours xx £10.00 (+ £2.50 giftaid)
For Isla - the real superhero xx
Anthony and Poppy Muller £50.00 (+ £12.50 giftaid)
All our love to you Nicky and to Isla.
Claire and family £50.00
Well done all! Wish I could have been there to run with you! Isla is the real superhero!
Jason Saunders £25.00 (+ £6.25 giftaid)
Good Luck Team xxx All our Love Jason, Sarah, Sammy and Olivia x
A and C £200.00 (+ £50.00 giftaid)
What a team!
Good luck today!
Anonymous £50.00 (+ £12.50 giftaid)
Good luck Janine. Love Jan x
The Ball Family £15.00 (+ £3.75 giftaid)
Good luck team Isla!
Anonymous £200.00 (+ £50.00 giftaid)
You're fantastic guys. Thank you. Good luck. Xx
Mary and Richard £30.00 (+ £7.50 giftaid)
All the best Cos
Anonymous £50.00 (+ £12.50 giftaid)
Best of luck you wonderful people! X
Avriel £50.00 (+ £12.50 giftaid)
Enjoy the run it's such a worthwhile cause
Ces £30.00 (+ £7.50 giftaid)
Go Team! Run like the wind xx
Julie delenio £10.00 (+ £2.50 giftaid)
Seb £50.00 (+ £12.50 giftaid)
Sylwia i Andrzej £40.00
Hope you have a good run for a super lady Isla -)
Love auntie Lou xxxx £15.00 (+ £3.75 giftaid)
Go team Isla!!!! Xxx